Thank you to all of you faithful prayer warriors who have kept lifting up my dad and my family these past several days. We know beyond a shadow of a doubt that God is in control of this situation.
My dad has made remarkable strides cognitively over the past few days. Last night he had us all in hysterics. He was doing John Wayne impressions and singing Veggie Tales songs. He was on quite the comedic roll and while I know that he must have been as high as a kite, it was so nice to be able to laugh with my family again. He is so happy to be alive and I see God at work in him and in my parent's marriage and I am so thankful for that!
However, we are still having some pretty big obstacles to get over. He is unable to swallow and is very weak physically. He is on a feeding tube. We are not sure what is going on with his throat. He has had several tests done and is seeing a specialist. It is as if the muscle in his throat just sort of quit working and he is having to retrain it. Today he walked to the doorway of his room with a walker, and we praise the Lord for getting to watch his physical strength gradually return, but again we have a long way to go to reach "normal." So, it looks like he will stay in the hospital until Monday or Tuesday and then move to a nursing home for the next three or four months. An old family friend of ours is actually a nursing home inspector and was able to immediately make arrangements in a facility that we feel confident will provide excellent care. This is not the outcome that we were hoping for, but I feel so thankful that he is alive to recover! We will take it one day at a time and stand by his side no matter what. Please continue to keep him in your prayers.
Pray specifically for:
1. The muscles in his throat to regain strength and for him to be able to swallow.
2. His physical strength and endurance to return.
3. For him not to get pneumonia.
4. For his spirits to stay high.
5. That he will feel the presence of God at all times.
6. For my parent's marriage as they navigate these uncertain times together.
7. For complete healing and restoration by Christmas!
Thank you all for reading and continuing to pray. I cannot convey how blessed I have been personally by the outpouring of love. I am so rich because of the amazing people that God has placed in my life!
Isaiah 40:29 "He gives strength to the weary and increases the power of the weak."
Zephaniah 3:17 NLT
For the LORD your God is living among you. He is a mighty savior. He will take delight in you with gladness. With His love, He will calm all your fears. He will rejoice over you with joyful songs.
Friday, August 6, 2010
Wednesday, August 4, 2010
Better Day
This whole journey has been full of so many ups and downs. Yesterday was hard. We were very hopeful that he would be extubated, and that did not happen. He looked so miserable and chewed the tube in his mouth until he bled. He seemed to understand a bit more of what was happening to him and kept looking at me like he wanted an explanation, but we were not ready to tell him everything until he could ask his own questions. Anyway, it essentially has taken him forever to come out of the sedation and the waiting has been hard. I left the hospital yesterday discouraged, tired, and sad.
Then I had to go back to work today, and while I know that work can wait, I hated to miss the first day back. I am so blessed to work for and with good people who will support me and work with me during this time. I have felt very torn between being a daughter, mother, wife, and now counselor. I don't want to let anyone down.
Today has been a better day. He was extubated this morning. His throat sounds terrible- like he swallowed a bucket of gravel. He is not able to swallow yet, so he cannot even have ice chips, and I know that he is terribly thirsty. They think that he might have some infection in his throat. They also did another CT scan of his head today to rule out neurological damage. There was some concern because he was still so groggy and disoriented today. However, as soon as he came back from the scan, he was much more responsive. He could identify both my mom and I by name. He called me "bug bug" (his nickname for me), asked my mom for a kiss, and was able to raise his arms, wiggle his toes, etc. This was huge progress. We went back up this evening, and he was much more verbal and able to express complete thoughts. He wants a chocolate milkshake and assured us that he has not forgotten about the family trip to Disneyland that he promised us! I think that is a good sign.
We are hopeful that he will be able to get out of bed tomorrow. He has a bad rash down his back- not sure if it is a reaction to medication or what. I think that being able to even sit in a chair would be great progress. So, keep on praying. We are certainly not out of the woods yet, but he is alive and making progress, and for that I am so very thankful.
Then I had to go back to work today, and while I know that work can wait, I hated to miss the first day back. I am so blessed to work for and with good people who will support me and work with me during this time. I have felt very torn between being a daughter, mother, wife, and now counselor. I don't want to let anyone down.
Today has been a better day. He was extubated this morning. His throat sounds terrible- like he swallowed a bucket of gravel. He is not able to swallow yet, so he cannot even have ice chips, and I know that he is terribly thirsty. They think that he might have some infection in his throat. They also did another CT scan of his head today to rule out neurological damage. There was some concern because he was still so groggy and disoriented today. However, as soon as he came back from the scan, he was much more responsive. He could identify both my mom and I by name. He called me "bug bug" (his nickname for me), asked my mom for a kiss, and was able to raise his arms, wiggle his toes, etc. This was huge progress. We went back up this evening, and he was much more verbal and able to express complete thoughts. He wants a chocolate milkshake and assured us that he has not forgotten about the family trip to Disneyland that he promised us! I think that is a good sign.
We are hopeful that he will be able to get out of bed tomorrow. He has a bad rash down his back- not sure if it is a reaction to medication or what. I think that being able to even sit in a chair would be great progress. So, keep on praying. We are certainly not out of the woods yet, but he is alive and making progress, and for that I am so very thankful.
Monday, August 2, 2010
Relief.
I feel like I have been on a roller coaster and I just made it over the big, scary drop in the ride- the part that you dread because you know that your stomach will drop out and it will take your breath away. And even though I know that there will be more twists and turns and scares ahead in the ride, I feel like something amazing was accomplished because I survived the worst part- the part that scared me the most.
Doctors came in this morning and gave us a good pre-op report. Everything looked as good as it possibly could given our situation. We were told that the surgery would be a minimum of 3 to 4 hours, so we sat down and prepared to wait. We got a call at 9 that they had just started the incision. At 11 we got another call. We were expecting an update. Instead they told us that they were closing him up. The surgeon came in about 20 minutes later and basically said that his heart looked much stronger than they had anticipated and everything had gone smoothly. What an answer to prayer. We were prepared for 6 hours of waiting and instead, God came through in under two! Incredible. It was almost as if you could immediately feel the tension lift in the room.
We waited hopeful that he might wake up, but finally at 6 pm the doctors told us that he would more than likely stay under the sedation overnight so we decided to go home and rest and come back in the morning. I know that he has terrible days ahead, but there are days ahead, and for that I am so thankful. I know that his recovery will be painful, frustrating, and at times overwhelming, but there will be a recovery and for that I praise the Lord! The scripture that keeps coming to mind is Joshua 1:9 "Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." My prayer is that my dad will be able to cling to this on days that he wants to quit. On days that he feels discouraged. Or scared. I pray that he will know beyond a shadow of a doubt that the Lord his God has been with him throughout this entire ordeal.
I know that the roller coaster is not over. I know that there will be ups and downs. But for today I am so relieved that I could cry. And tomorrow I will get to hear my dad's voice again, and I cannot wait! I have so much that I want to tell him. I hope that this will be the beginning of a brand new chapter in our relationship.
I cannot express how thankful I am for the AMAZING outpouring of love that I have felt from friends and family. Phone calls, text messages, Facebook love, people lining up to keep my children, hospital visits, and more than anything prayer. You guys bless my socks off. Thank you from the bottom of my heart. Keep the prayers coming.
Doctors came in this morning and gave us a good pre-op report. Everything looked as good as it possibly could given our situation. We were told that the surgery would be a minimum of 3 to 4 hours, so we sat down and prepared to wait. We got a call at 9 that they had just started the incision. At 11 we got another call. We were expecting an update. Instead they told us that they were closing him up. The surgeon came in about 20 minutes later and basically said that his heart looked much stronger than they had anticipated and everything had gone smoothly. What an answer to prayer. We were prepared for 6 hours of waiting and instead, God came through in under two! Incredible. It was almost as if you could immediately feel the tension lift in the room.
We waited hopeful that he might wake up, but finally at 6 pm the doctors told us that he would more than likely stay under the sedation overnight so we decided to go home and rest and come back in the morning. I know that he has terrible days ahead, but there are days ahead, and for that I am so thankful. I know that his recovery will be painful, frustrating, and at times overwhelming, but there will be a recovery and for that I praise the Lord! The scripture that keeps coming to mind is Joshua 1:9 "Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." My prayer is that my dad will be able to cling to this on days that he wants to quit. On days that he feels discouraged. Or scared. I pray that he will know beyond a shadow of a doubt that the Lord his God has been with him throughout this entire ordeal.
I know that the roller coaster is not over. I know that there will be ups and downs. But for today I am so relieved that I could cry. And tomorrow I will get to hear my dad's voice again, and I cannot wait! I have so much that I want to tell him. I hope that this will be the beginning of a brand new chapter in our relationship.
I cannot express how thankful I am for the AMAZING outpouring of love that I have felt from friends and family. Phone calls, text messages, Facebook love, people lining up to keep my children, hospital visits, and more than anything prayer. You guys bless my socks off. Thank you from the bottom of my heart. Keep the prayers coming.
Sunday, August 1, 2010
Update- Sunday, August 1st.
I am so very appreciative of the outpouring of prayers, love, support, concern, help with my kids, etc that we have experienced this week. In the midst of all of this, I feel so richly blessed and honestly feel the presence of the Lord. Thank you!
My dad is very stable physically. He is still on the ventilator and heart pump in order to let his body rest as much as possible before surgery. We are scheduled to go into surgery at 7:30 in the morning. The doctors said today that he looks ready to go. I am a huge believer in specific prayer. Please join me in praying for a smooth surgery tomorrow. It is a risky surgery if you go in with a relatively healthy heart, but the risk increases drastically when your heart is functioning like my dad's. Also, please pray that the damage to his heart from the heart attack is minor. He will have congestive heart disease of some kind- we are not sure how extensive or life altering that will be yet. Also, please pray for his emotional state after surgery. We are told that depression is very common after this kind of procedure. Please pray that God will fill him with strength, perseverance and joy. Finally, please pray for my mom. She is a rock, but I know that this is incredibly difficult on her too.
The nurses are amazed at how lucid my dad has been. He definitely has had moments of clarity over the last few days. He knows when we are there. He mouthed "I love you" to me yesterday and he desperately wants to talk. He responds to our touch, can nod and squeeze our hands, and even cry. It is painful to watch someone who has always been so strong be so incapacitated. I have complete faith that he is going to recover from this and that we have years of joy ahead of us- we are planning campouts and a big family trip to Disneyland. I love my dad so very much. I know that he knows that, but I cannot wait to be able to sit down over a cup of coffee and tell him again! Thank you all for your continued prayers. I will post tomorrow to let you know what is going on.
My dad is very stable physically. He is still on the ventilator and heart pump in order to let his body rest as much as possible before surgery. We are scheduled to go into surgery at 7:30 in the morning. The doctors said today that he looks ready to go. I am a huge believer in specific prayer. Please join me in praying for a smooth surgery tomorrow. It is a risky surgery if you go in with a relatively healthy heart, but the risk increases drastically when your heart is functioning like my dad's. Also, please pray that the damage to his heart from the heart attack is minor. He will have congestive heart disease of some kind- we are not sure how extensive or life altering that will be yet. Also, please pray for his emotional state after surgery. We are told that depression is very common after this kind of procedure. Please pray that God will fill him with strength, perseverance and joy. Finally, please pray for my mom. She is a rock, but I know that this is incredibly difficult on her too.
The nurses are amazed at how lucid my dad has been. He definitely has had moments of clarity over the last few days. He knows when we are there. He mouthed "I love you" to me yesterday and he desperately wants to talk. He responds to our touch, can nod and squeeze our hands, and even cry. It is painful to watch someone who has always been so strong be so incapacitated. I have complete faith that he is going to recover from this and that we have years of joy ahead of us- we are planning campouts and a big family trip to Disneyland. I love my dad so very much. I know that he knows that, but I cannot wait to be able to sit down over a cup of coffee and tell him again! Thank you all for your continued prayers. I will post tomorrow to let you know what is going on.
Friday, July 30, 2010
Update on my dad.
First, thank you all so much for your prayers and love. It is definitely felt.
My dad had an angiogram at 12:30 today that showed 99% blockage in three arteries. It is honestly a miracle that he is alive. His heart has been in an irregular rhythm since he has been in the hospital. He is still fully sedated and intubated. He can respond to commands (squeeze my hand, etc) and will nod his head that he understands. He seems to really know and respond to the presence of family members, so I think he is understanding a lot of what is going on right now.
They will do a triple bypass on Monday. They shocked his heart today and it is currently in a normal rhythm. He is still on the ventilator and has a machine that is regulating his heart as well. The plan is to keep him sedated, let the ventilator and heart machine "work" for him, let him rebuild as much strength as possible, and operate on Monday. The surgeon said that his heart is "too sick" to operate on now, so we will wait and pray for strength over the weekend. The surgery should be about three hours and the first six hours after the surgery are critical.
It is painful to watch someone that means so much to you and that you love so much be completely helpless and hurting. However, I feel confident that God is bigger than all of this. Even his cardiologist said that "God is the one that will sustain his life." We have so much to be thankful for- we know what the problem is, his medical care has been amazing, we have felt the prayers and support of so many precious friends, our whole family is together and has been able to stay together through this, and Mike has been amazing to be mister mom! I am anxious to write the post about "we are going home from the hospital today!"
I am reminded of how fragile and tentative human life can be. I love my dad so much. My kids adore their Papa. I have a lot of living that I still want to do with him. This has been an emotional time to say the least. Thank you all for your continued prayers. I will do my best to keep the blog updated.
My dad had an angiogram at 12:30 today that showed 99% blockage in three arteries. It is honestly a miracle that he is alive. His heart has been in an irregular rhythm since he has been in the hospital. He is still fully sedated and intubated. He can respond to commands (squeeze my hand, etc) and will nod his head that he understands. He seems to really know and respond to the presence of family members, so I think he is understanding a lot of what is going on right now.
They will do a triple bypass on Monday. They shocked his heart today and it is currently in a normal rhythm. He is still on the ventilator and has a machine that is regulating his heart as well. The plan is to keep him sedated, let the ventilator and heart machine "work" for him, let him rebuild as much strength as possible, and operate on Monday. The surgeon said that his heart is "too sick" to operate on now, so we will wait and pray for strength over the weekend. The surgery should be about three hours and the first six hours after the surgery are critical.
It is painful to watch someone that means so much to you and that you love so much be completely helpless and hurting. However, I feel confident that God is bigger than all of this. Even his cardiologist said that "God is the one that will sustain his life." We have so much to be thankful for- we know what the problem is, his medical care has been amazing, we have felt the prayers and support of so many precious friends, our whole family is together and has been able to stay together through this, and Mike has been amazing to be mister mom! I am anxious to write the post about "we are going home from the hospital today!"
I am reminded of how fragile and tentative human life can be. I love my dad so much. My kids adore their Papa. I have a lot of living that I still want to do with him. This has been an emotional time to say the least. Thank you all for your continued prayers. I will do my best to keep the blog updated.
Thursday, July 29, 2010
Prayers, please.
Due to my recent email and facebook hacking, I still have no FB account, so I think that my blog is probably the best way to get information out to my friends and loved ones. My parents have had quite the month in July. Long story short, my mom had an irregular mammogram and after a biopsy ended up having irregular tissue removed on Monday. The good news is that it is not cancer and she is going to be fine, but is in some discomfort and has been on an emotional roller coaster through the whole ordeal.
My dad has been having discomfort in his chest and esophagus. He went for a physical about three weeks ago and they detected an irregular rhythm in his heart so they shocked it and sent him home with some medicine. His discomfort has increased to the point that swallowing has become almost impossible. He has had several tests, which have not shown much of anything. My mom came home from her follow up appointment today to find him unconscious and clearly in pain. He was taken by ambulance to UMC and is currently completely sedated and intubated. As of right now, it does not look like a stroke or blood clot, which is good news. He has a-fib and has had some blood pressure issues while sedated. I am hoping to know more tomorrow.
I am so blessed by the number of phone calls and texts that we received today. More than anything, I covet your prayers. I am pretty fond of these two and want to enjoy several more years of living life with them.
My dad has been having discomfort in his chest and esophagus. He went for a physical about three weeks ago and they detected an irregular rhythm in his heart so they shocked it and sent him home with some medicine. His discomfort has increased to the point that swallowing has become almost impossible. He has had several tests, which have not shown much of anything. My mom came home from her follow up appointment today to find him unconscious and clearly in pain. He was taken by ambulance to UMC and is currently completely sedated and intubated. As of right now, it does not look like a stroke or blood clot, which is good news. He has a-fib and has had some blood pressure issues while sedated. I am hoping to know more tomorrow.
I am so blessed by the number of phone calls and texts that we received today. More than anything, I covet your prayers. I am pretty fond of these two and want to enjoy several more years of living life with them.
Tuesday, July 27, 2010
Morning glory and other random pictures!
Evyn moved out of her crib and into her big girl bed a few weeks ago! She absolutely loves it and transitioned seamlessly. She looks so cute on her pillow all tucked in- I need to take pictures of her! Now in the mornings when Carter wakes up, he tiptoes into her room to see if she is awake too. If she is, he holds her hand while they walk down the stairs. It is so sweet to hear through the monitor "Good morning, sister. Did you have good sleep? Want to go downstairs with me?" These two are so stinking sweet together.
I love the way that this little girl looks when she first wakes up. Her little facial features are so tiny and petite and her hair is so large and in charge! I promise that I comb her hair before I put her to bed every night.
We made a daytrip to Roaring Springs last week and Ev was in desperate need of a nap. She decided that her daddy's arms were the perfect place to crash. Sweet Mike held her for hours and looked so content the whole time. What a lucky little girl to have a daddy who absolutely adores her and will teach her what it means to be cherished!
These two clowns spent the majority of the day in the raft together. Good times were had by all!
Sunday, July 18, 2010
Lazy Days of Summer
I love it that my kids think that an afternoon in an inflatable pool is as much fun as Schlitterbahn! We spent this afternoon playing in the sandbox, on the slide, and in the pool. There was much laughing and splashing. This is the kind of afternoon that summer was made for.
Thursday, July 15, 2010
World's Best Uncle
Every mom knows what a gift it is when people that you love go out of their way to invest in the lives of your children. Both of my kids completely think that Uncle Mark hung the moon. Carter tells everyone that Mark is his best friend, and Evyn literally comes to life around him- running across the room to sit in his lap and jabber non-stop. He has logged countless hours reading books, doing puzzles, playing games, watching cartoons, coming to t-ball games, and just being intentional about being around. We tease that he is the 5th member of the Lewis family. He is an incredible guy. And tomorrow is his birthday. I hope that it is a day full of blessings and that he will know how very much we love him! Thanks for all you are to my family, Mark. Happy birthday! I love you!
Friday, July 9, 2010
Family Camp 2010
We just got home from another wonderful year at Family Camp! I cannot say enough good about this place. We went this year planning to do something different next year for vacation, but we ended up leaving a deposit for next year before we came home. It is simply that wonderful. If you are a young family and might be interested in joining us next year, I would love to share details of our trip or show you the video from our week at camp! The best way to describe it is like spending a week at Kellerman's (from Dirty Dancing) only it is all centered on Christ, air conditioned, and the staff are amazing college kids who love the Lord and will minister to your kids in ways that you cannot imagine! We had amazing time as a family, Mike and I enjoyed sweet time with just the two of us, and both kids had a blast! We can't wait for next year.
Every morning the kids go to kid activities (Carter was a Coconut Kid and Evyn was in Ala Moana) while parents go to break out sessions. Our teacher this week was hilarious and we came home with some really great and simple stuff to apply to our marriage and our family. Meanwhile, the kids are playing and being loved on by the incredible staff. After the sessions, parents get another hour to hang out together before picking up kids. One day Mike and I did the zipline together, or you can get coffee or just hang out kid free! So nice!
Then in the afternoons you get family time (but the nursery is open for nap time if you want it) where you have your run of the place- waterpark, swimming pool, putt putt, jumping pillow, playground, canoes, archery, monster golf, paintball, basketball, ropes course, etc. There are also excursions to the lake where you can go bluff jumping, tubing, or skiing.
Evyn on her first canoe ride! This was actually taken on our way to the Sunrise Surfer breakfast. We had to find a treasure map, follow it to collect the treasure, and bring it back to the island in order to eat our breakfast by the campfire! Carter loved it!
Carter and daddy went hunting for crawdads on the canoe trip.
Every evening has a theme- ninja dojo, Christmas on the island, and nerd night were a few from this year. People dress up and there are evening activities that go with the theme. They are so creative and well done and really allow you the opportunity to just laugh and enjoy being a family. Everything is optional- they stress that this is your vacation, so you can do as much or as little as you want to do. There is absolutely no way to do everything that they have planned!
I tried to put pictures in a slideshow, but had some technical difficulties. Feel free to look or not, but here are some highlights from our week!
Evyn loved the frosting on a birthday cookie that we shared with some friends at camp.
We went to the Butterfly Palace in Branson on one rainy afternoon, and watched a 3-D movie about the life of a butterfly. Carter was horrified that the butterfly got eaten by the grasshopper, but Evyn thought it was hilarious.
Carter really loves the putt putt course, and it was pretty much right outside our front door, so he could golf anytime that he wanted to!
This was taken on Christmas night. The dining hall was decked out in Christmas decorations and we went on a gospel walk where we saw Rudolph, Santa, Frosty and the Grinch. Then we decorated a Christmas tree and talked about the best gift of all. This was, of course, followed by decorating Christmas cookies and singing carols.
Evyn and Carter both really enoyed hanging out in the hammocks.
This kid has some mad archery skills for a 5 year old.
Sharing a milkshake poolside.
Jumping pillow.
This day we left Evyn in the nursery and took Carter on a "big kid" day. We went swimming with just him and went to the lake. He tubed with me, then with Mike, and then surprised us both by asking to go by himself! He rode solo for about 20 minutes. I was so proud of him. And it was so amazing to see how great he felt about himself after doing so many "big kid" things!
He also climbed a 30 foot rock wall while he was with the Coconut Kids. He made it all the way to the top! We went back to watch him do it again, and he didn't quite make it, but I was still so proud. I feel like I watched him grow up right in front of me during the week.
Sweet Evyn on the 4th of July. By coincidence, the 4th of July was parent night this year, where the parents get a candlelight dinner while your kids are having a blast without you. Then you can ride the boat into Branson landing and walk and shop or listen to live music. So much fun. When we got back and picked up the kids, there was an amazing firework display!
Nerd night.
Carter drove our pontoon. I love his face in this picture. He actually steered and did a great job. His "helper" (Chris) was so great with Carter and was also our boat driver on lake day. Evyn loved riding on the boat and just snuggled in my lap the whole time. Lake Taneycomo is COLD and even being on the boat was pretty chilly.
These two look like they are about to be up to no good.
Climbing the wiggle ladder. I wish that I had a picture of Mike wiping out on this thing. Hilarious!
These were the girls from Ala Moana (the Shallows) where Evyn hung out- Jessica, Erika, Jenna, and Lindsay. They were wonderful with her. She got to play in the sprinklers, sandbox, jumping pillow, playground, gym, make crafts, and so much more. She had a fabulous time!
I can't really explain how neat the staff is. This is Kenny- he worked with the Coconut Kids. Carter adored him. He would sit with us at meals, made Carter PBJs, and really brought him out of his shell over the course of the week. On the last night, we looked up and Carter was at the top of the huge waterslide (that we had to bribe him to go down with us) with Kenny having the time of his life. They start loving on you from the minute that you drive onto campus- they completely unload your car while you are going on a tour, and then the honestly look for opportunities to help you throughout the week. For example, Evyn decided this week that high chairs are for the birds, which made meal time challenging. Every single meal, one of the staff would offer to take her outside or upstairs so that we could have a chance to finish eating. Those of you with almost 2 year olds know how amazing this is! And to watch Carter build relationships with college guys who are so sold out for the Lord was so cool. I would love for both of my kids to work at Kanakuk one of these days.
This is Mallory, who was ever so helpful with bathroom issues with Carter. Again, such a gift to this mommy to not have to worry about accidents while he was with the big kids. She has a beautiful spirit and is always smiling!
I will leave you with a Lewis family photo, ninja style! Sorry for the length of this post, but there is so much to share! I would love to tell you more, if you are interested. It is a week that you will never forget with your family!
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